Tag Archive | "home care"

Cuts to Medicaid Programs Avoided Due to ADA Compliance Issues

Separate court proceedings in California and Louisiana last week upheld the right of elders and people with disabilities to receive care in their homes under the Americans with Disabilities Act (ADA).

In California, federal judge Claudia Wilken issued a preliminary injunction on Jan. 19 blocking the state from enacting a 20 percent cut to the In-Home Supportive Services (IHSS) program, which provides care to nearly 450,000 elders and people with disabilities who have Medicaid.

The cuts were initially scheduled to take place on Jan. 1, but were temporarily halted by Wilken last December due to concerns that they violated the ADA. Wilken reiterated those concerns in her latest injunction.

If ever enacted, the IHSS budget cut would cause 372,000 IHSS consumers to see reductions in home care services, possibly forcing them into nursing homes or other institutions — a violation of the ADA. In 1999, the Supreme Court ruled that the ADA gives seniors and people with disabilities the right to live at home if their care needs can be reasonably met there.

“Judge Wilken has consistently recognized how crucial IHSS is for people with disabilities in California,” said Donna Calame, the executive director of the San Francisco IHSS Public Authority and a PHI board member.

“Her ruling was terrific for both technical legal reasons and because it continues, for the time being, the current level of service hours to people who live in borderline poverty situations — both consumers and the workers who assist them,” Calame added.

The state plans to appeal Wilken’s decision to the Ninth Circuit Court of Appeals. Last month the Ninth Circuit ruled that Washington State had violated the ADA by cutting its Medicaid in-home care program by 10 percent.

Louisiana Lawsuit Settled

Meanwhile, in Louisiana, advocates for elders and people with disabilities reached a settlement with the state over a reduction in-home care services there.

Advocacy Center and AARP Foundation Litigation advocates had filed a class action lawsuit in September 2010, arguing that the state was violating the ADA by imposing a 32-hour weekly cap on consumers enrolled in the state’s Medicaid in-home services program.

As part of the settlement (pdf), state officials will request 200 waivers from the federal government allowing Louisiana residents who receive Medicaid to qualify for long-term personal care services.

The waivers will be awarded to consumers who can demonstrate that the 32-hour cap would force them to transfer into a nursing home.

Ken Zeller, a senior AARP attorney, told the Associated Press that the settlement is “win-win” because it “allows people to age in the place they know and love and at the same time saves the state money in more costly nursing home placements.”

– by Matthew Ozga

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U.S. Appeals Court Decision Could Prevent California IHSS Cuts

A December ruling by the Ninth U.S. Circuit Court of Appeals could prevent massive cuts to California’s In-Home Supportive Services (IHSS) program.

The Dec. 16 decision (pdf) by the San Francisco-based U.S. Court of Appeals did not directly address California. Rather, it centered on 12 Washington State Medicaid consumers who sued the state for its decision last February to reduce in-home care hours by 10 percent.

The Ninth Circuit found that the dozen plaintiffs would likely be forced to live in nursing homes as a result of the 10 percent cut — a violation of the federal Americans with Disabilities Act (ADA). The court therefore restored in-home services for the plaintiffs.

The court did not overturn the 10 percent cut, however, since the lawsuit was not presented as a class action on behalf of all 45,000 Washington State in-home care recipients.

Implications for California

The Ninth Circuit’s decision has clear implications for another case involving cuts to the California IHSS program.

On Jan. 19, U.S. District Court Judge Claudia Wilken will preside over a hearing to determine whether the state of California can legally proceed with a proposed 20 percent cut to IHSS, which provides care to 440,000 low-income elders and people with disabilities.

In December, Wilken halted the proposed cuts — which had been scheduled to take effect Jan. 1 — because they potentially violated the ADA and the Social Security Act, among other federal laws.

Wilken will have to take the Ninth Circuit’s recent decision into account during the upcoming hearing.

“The Ninth Circuit’s conclusion that loss of hours of home care services exacerbates people’s risk of involuntary institutionalization is very relevant to the case in California,” attorney Stacey Leyton told the San Francisco Chronicle in December.

– by Matthew Ozga

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PHI President Steven Dawson Addresses Business Owners’ Concerns About the DOL’s Proposed Rule on the Companionship Exemption

Several business owners have expressed concern to PHI as to how the newly proposed U.S. Department of Labor (DOL) regulations on the home care aide “companionship exemption” will impact them. In the following message, PHI President Steven Dawson describes in greater detail why PHI strongly supports the DOL’s recommendation to narrow the exemption.

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Let me begin by saying that PHI is the prime sponsor of two home care agencies, one in New York and one in Pennsylvania, in total employing more than 2,000 aides. I serve on the board of each. In both cases, our agencies pay our aides more than minimum wage, as well as overtime pay.

That is to say, PHI’s support for the DOL’s new regulations does not stem from abstract political theory, but rather it is grounded in the day-to-day realities of just how difficult and challenging is the business of providing home care services in today’s marketplace.

We at PHI acknowledge that in many states, no fair labor standards for home care aides exist beyond the federal exemption. Therefore, should the DOL’s proposed language go into force next year, adjustments will be required for some employers, workers and clients — and in the immediate term, some of those adjustments may be painful. Good employers like those who have written us will be impacted, along with the rest of the industry.

However, the adjustments that these business owners will be making are not the fault of the new regulations. The fault lies with those in the home care industry who for 30 years have argued that home care aides should be allowed to work without minimum wage and overtime protection — a protection to which nearly every other worker in America is entitled.

Therefore over the past 30 years a large and complex industry has emerged, built around the exception to these basic labor protections — and therefore business models, labor markets, and consumer expectations over time have evolved accordingly, relying on the financial assumption of no minimum wage and overtime costs. Those were the “rules of the road” established over time, and to compete successfully, most all businesses had to follow those rules.

Now, those rules are likely to change. And when an economic system that has been distorted over a long period of time is suddenly corrected — to conform to nearly every other industry in the country — the adjustments can indeed be painful. To take an historical parallel: before racial integration, communities like Harlem here in New York enjoyed relatively strong African American-owned enterprises, confined within but also reinforced by the rigors of segregation. When integration became the law of the land, neighborhoods like Harlem ironically experienced wrenching economic changes. Many small business owners were hurt — including some of the very people integration was intended to benefit. Yet no one today would argue that integration was therefore the wrong historic choice for our country.

And it is true that some workers, when given a choice, would prefer more hours rather than being cut back due to an employer’s higher overtime costs. Yet it is also true that some workers, if given the choice, would also take a higher wage in lieu of paying social security taxes — precisely because their base wages are so low — but that doesn’t mean we should allow employers to avoid their responsibility to cover social security, by paying their workers under the table. Certainly some workers would be happy in the short term, but all workers over time would suffer.

It is also possible that higher wages due to overtime may force some consumers to either pay more, or receive fewer hours of service. Unfortunately, that same argument can be made of any social service: Why, then, don’t we refuse to pay firefighters and policeman overtime — for surely that would mean we would have more money to pay for more officers out there on our streets to protect us. Rather, we pay them overtime wages because their jobs are difficult and essential, and they deserve to have their labor rights protected, even if it means fewer hours of service to us all. The same is true for home care workers: The needs of any one of us as business owners, or even homebound consumers, can never morally justify abridging the rights of another.

Finally, I find it particularly difficult to hear arguments from other business owners about continuity of care for their customers, when the turnover rate for home care workers in our industry averages around 50 percent per year. If the industry were truly concerned about continuity of care, they would be doing everything they could to stabilize the front-line workforce by helping to professionalize it. If the industry were truly concerned about quality of care, they would support requiring minimum training standards for personal care workers. Instead, so long as the industry continues to treat home care workers as if they were, as President Obama said last Thursday, “teenage babysitters,” the home care workforce will continue to churn, consumers will continue to face a constantly revolving door of poorly supported workers into their homes — and the home care industry will continue to be isolated from the rest of the health care system.

In the immediate term, some profit margins may indeed become narrower for a while; some workers will have fewer hours; some consumers will be forced to pay more to keep their aide working more than 40 hours a week. However, we firmly believe that, over time, market expectations will re-align to the new rules, and businesses, workers, and clients will acclimate. We know this is likely, because in states like Pennsylvania — which have state-level regulations that do require home care agencies to extend overtime and minimum wage protection — there are hundreds of proprietary home care businesses that seem to be doing quite well.

We realize this is cold comfort for many employers facing the immediacy of these changes. Yet we at PHI believe the costs across society are relatively modest in exchange for correcting an industry-wide injustice. As Martin Luther King wrote, “The arc of history is long, but bends toward justice.” He never promised, however, that the bending of that arc would come without cost.

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Home Care Consumer Bill of Rights Proposed by Senator Franken

Senator Al Franken (D-MN)

With the support of three of his colleagues from the U.S. Senate Committee on Health, Education, Labor and Pensions (HELP), Senator Al Franken (D-MN) introduced the Home Care Consumer Bill of Rights Act (S. 1750) on October 20.

Franken plans to incorporate the bill (pdf) into the upcoming reauthorization of the Older Americans Act (OAA).

The bill aims to guarantee basic rights, including protection from abuse and neglect, to older Americans who receive long-term services and supports in their homes and communities.

Specifically, the Act would:

  • direct states to develop a Home Care Consumer Bill of Rights;
  • establish a voluntary Home Care Ombudsman Program to support states that choose to provide ombudsman services to resolve the concerns and complaints of older adults who receive home and community-based services; and
  • develop quality standards for home and community-based services so that older adults and their families can make more informed decisions about who provides their services.

Remaining at Home a Top Priority

“It became very clear to me after meeting with seniors from Moorhead to Winona that remaining independent and at home is a top priority for our seniors,” Franken said.

According to a May 2010 environmental scan (pdf) of Medicaid-funded long-term services and supports by the Center for Health Care Strategies, 41 percent of Medicaid expenditures for long-term services and supports are for home and community-based services.

The increasing number of older Americans in need of long-term services and supports who choose to receive services in their homes and communities rather than in nursing homes makes Franken’s bill particularly relevant.

These rights, protections, and standards are already available for nursing home residents.

– by Gail MacInnes, PHI National Policy Analyst

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Coalition Seeks Update to Pennsylvania’s Family Caregiving Act

Pennsylvania state capitol building in Harrisburg

The Pennsylvania Senior Support Coalition, which includes organizations such as AARP Pennsylvania, Pennsylvania Homecare Association, and Pennsylvania Association of Area Agencies, called on lawmakers to amend the two-decade-old state law known as the Family Caregiver Support Act (pdf) at a press conference on September 26.

The coalition is urging state legislators to pass companion state House and Senate bills (HB 210/SB 639) to make it possible for non–family members to be reimbursed for providing home care services and supports to low-income elders and people of any age who are “functionally dependent,” have chronic dementia, or suffer from Alzheimer’s disease, even when they do not reside in the same home.

The organizations are seeking to update the restrictive state law so that it is in sync with the federal program of the same name. The national program permits reimbursement to primary caregivers who are not family members, or do not reside with the individual in need of care.

The advocates are also seeking other changes in the law that would increase reimbursement for the purchase of medical supplies, respite care services, and home modifications.

On October 4, however, that portion of the state House bill was amended to scale back the proposed reimbursement rates. For example, the home modification limit is now $2,000 instead of $6,000.

In an article in the Pittsburgh Post-Gazette, AARP Advocacy Manager Ray Landis said that in recent years, AARP Pennsylvania has been unable to spend all of the state funding slated for the family caregiving program “because of the restrictions on who qualifies for help.”

A spokeswoman for the Pennsylvania Department of the Aging is reported as saying that Governor Tom Corbett (R) has “not yet taken a position on the proposed changes.”

– by Deane Beebe

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First Local Care Congress Held in San Francisco

Caring Across Generations logo

Caring Across Generations, a campaign to transform long-term care in the U.S., held its first local “Care Congress” in San Francisco last Saturday.

During the event, numerous speakers talked about the “Five Fingers of the Caring Hand”: job creation; job improvement; job training and career ladders; paths to U.S. citizenship; and support for individuals and families.

Speakers also discussed the need to amend the companionship exemption of the Fair Labor Standards Act, which currently exempts home care workers from basic wage protections.

Launched in June by the National Domestic Workers Alliance and Jobs with Justice, Caring Across Generations is a national organization that promotes a federal policy solution to the growing demand for home care.

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